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Ehlers-Danlos syndrome (EDS) is a group of inherited disorders that affect the connective tissue in the body. Connective tissue is responsible for supporting and structuring the body's tissues and organs. People with EDS have a genetic defect in the synthesis, structure, or processing of collagen, which is a protein that gives strength and elasticity to connective tissue. This can lead to a range of medical complications, including:
Joint hypermobility: People with EDS often have hypermobile joints, which means they can move beyond the normal range of motion. This can lead to joint instability, dislocations, and chronic pain.
Skin fragility: People with EDS may have skin that is easily bruised and prone to scarring. They may also have skin that is thin and easily torn or ruptured. Also, they may heal slowly.
Cardiovascular complications: Some people with EDS may be at risk for certain cardiovascular problems, such as aortic root dilatation (enlargement of the aorta), aortic dissection (tearing of the inner layers of the aorta), and mitral valve prolapse (a condition in which the mitral valve does not close properly).
Chronic pain: Many people with EDS experience chronic pain due to hypermobile joints and other medical complications.
Gastrointestinal complications: Some people with EDS may have problems with the digestive system, such as reflux, difficulty swallowing, gastroparesis, and bowel perforation.
Scoliosis: Some people with EDS may develop scoliosis, which is a condition that causes the spine to curve sideways.
Arnold Chiari Malformation: this is a condition in which brain tissue extends into the spinal canal. It occurs when part of the skull is misshapen or smaller than is typical, pressing on the brain and forcing it downward. Likely not caused by EDS, but it's certainly an associated condition.
Sleep abnormalities: People with EDS may experience sleep abnormalities, such as difficulty falling or staying asleep, which can lead to worsening symptoms.
Dysautonomia: People with EDS may have problems with the autonomic nervous system, which controls functions such as heart rate and blood pressure. This can lead to symptoms such as lightheadedness, fainting, and difficulty regulating body temperature.
It's important to note that the severity and specific complications of EDS can vary greatly from person to person. Some people with EDS may have few or mild symptoms, while others may have more severe symptoms that require frequent medical attention. If you have EDS or think you may have it, it's important to work with a healthcare provider to manage your symptoms and reduce your risk of complications. I hope this helps!
Love & Light,
Jane
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